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Another fierce battle for control

Today i decided to attempt the dangerous  task of straightening my hair. A task that to most is rather simple and requires very little brain power. For me it involved a fierce battle between myself and...

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The Battle Against My Neurological Demons!

Today has involved yet another fierce battle against my Dystonia and my Non Epileptic Seizures. A battle which is still yet to be won. I try to defend myself against my neurological demons by sitting...

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Consultant News and Meditation.

Yesterday evening I finally received an email from my consultant saying he would see me next Tuesday at 1pm! I am so happy, it will be such a relief to have the Botox done, so that my Ormandibular...

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Life Challenges: Would you fight or would you run?

At 20 years old I didn’t expect to feel like my world was crumbling around me. I thought that I would be out clubbing with my friends, or trying to stay awake during a night shift on placement. I...

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Life is a Lottery

I love this quote, and for me it rings true, I may only be at the beginning of my storm but I am already a stronger person for it. It can be applied to anyone and everyone as we each go through our own...

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Medication Minefield

When diagnosed with Dystonia there is a minefield of medication surrounding you. One wrong move and your limbs are distorting and spasming at a rate that threatens to hospitalise you. A medication that...

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Exploring Boundaries

Before I became ill I frequently had periods away from home. Whether that was holidays with friends, slumber nights with mates or living in halls at university during term time. Having independence...

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Moving Day

Today I moved into my halls of residence at Oxford Brookes University. Saying goodbye to my family was incredibly hard. On countless occasions they have helped me through painful spasms and watched...

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Using My Wheelchair At Uni

Today was the first time I have had to give in and use my wheelchair at uni. I had anticipated that today would be harder than usual as I had traveled to London yesterday for my routine injections. My...

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Week 7 – Agony

I’m currently on week seven of my Botox cycle. My injections are not being administered for another week due to a mistake (lets presume it’s a mistake and not my new neurologist being devious, because...

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Chronic Lyme Disease – An Open Letter to the BBC

Dear BBC Today you published the article ‘Matt Dawson: I had to have heart surgery after a tick bite’. At first I was thrilled, it is always uplifting to see articles highlighting this condition being...

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